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New Jersey man with epilepsy uses hand-painted seashells to help find a cure

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Greater epilepsy awareness could be as simple as a walk on the beach, thanks to one New Jersey man.

Kyle Adamkiewicz, 33, has lived with epilepsy since being diagnosed at age 6. He is now combining his love of art with the power of nature to help bring his seizure disorder into the spotlight.

In Oct. 2022, Adamkiewicz began collecting seashells from the New Jersey shore, then painting and decorating them with heartfelt messages in search of a cure. He places his works of art along the seaside boardwalks in the hopes that they will inspire strangers to spread the word — and the shells.

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“It started with just painting a few shells, and I figured no one would find them,” Adamkiewicz said in an interview with Fox News Digital. 

“And then I saw people posting them online, and writing so many good and positive comments about the shells and about finding a cure for epilepsy. That motivated me to keep making more and more and more.”

Kyle Adamkiewicz epilepsy shells

Kyle Adamkiewicz, shown above, now 33, has lived with epilepsy since he was diagnosed at age 6. He is combining his love of art with the power of nature to help raise awareness of his disease. (Adamkiewicz family)

“And now they have been around the entire world.”

Adamkiewicz doesn’t drive, so his parents — Chuck and Laurie Adamkiewicz — drive him to place his shells.

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“We have shells with us in the car all the time, and he places them in different locations, different towns,” his mother told Fox News Digital.

Adamkiewicz estimates that he’s painted some 1,100 shells so far.

Many include messages about finding a cure for epilepsy, but he has also created themed designs for various occasions, like Shark Week and Halloween.

Kyle Adamkiewicz

Adamkiewicz has painted over 1,000 shells so far. “Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother. (Adamkiewicz family)

“Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother.

In addition to a hand-painted design, each shell contains Adamkiewicz’s initials, the year he decorated it and a QR code.

When people find the shells and scan the QR code, it takes them to a website. From there, they can access Adamkiewicz’s Facebook group, his Instagram account and a GoFundMe page set up to help raise funds for people to get “seizure alert” dogs.

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It also links to the Epilepsy Foundation website, where people can learn what to do if they witness someone having a seizure.

“Most people don’t really know how to handle someone if they’re having a seizure,” Adamkiewicz told Fox News Digital. “They just turn their back and walk the opposite way.”

Epilepsy shell

In addition to a hand-painted design, each shell contains Adamkiewiczs’s initials, the year he decorated it and a QR code. (Adamkiewicz family)

“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease that nobody really wants to know about.”

The Adamkiewicz family has a map of the world hanging on the wall — with pushpins to mark where the shells have been found, they told Fox News Digital.

In addition to locations across the U.S., shells have also been scanned in Mexico City, Greece, Italy, Panama, Canada, Nova Scotia, France, South Korea and Germany, Adamkiewicz said.

“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease.”

“People will find the shells and take them to those places,” Adamkiewicz said. “And sometimes people will ask me for shells to take to wherever they are traveling.”

He’s also partnered with the hospital to get kids with epilepsy involved in his project, bringing shells in for them so they can paint their own designs.

Touching lives

Beyond helping to find a cure, Adamkiewicz has a goal of reducing bullying of people with epilepsy.

Kyle and Laurie Adamkiewicz

Adamkiewicz is pictured with his mother, Laurie Adamkiewicz. In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity. (Adamkiewicz family)

“When I was growing up, if my parents or brother weren’t there, I was always made fun of in school and in the neighborhood,” Adamkiewicz said. “Especially right after I had a seizure — the kids would just stare at me and make fun of me.”

He went on, “I want people to know it’s OK to be friends with someone with epilepsy.”

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At one point, during second and third grade, he estimates that he was having 100 seizures per day.

“It’s been a very hard and lonely life for Kyle, and very painful to see as a mother and father,” Laurie Adamkiewicz added.

The goal, she said, is that the shells will help to make life a little easier for those with epilepsy — and their families.

Epilepsy shells

Adamkiewicz said his seashell project has been a therapeutic endeavor for him. “If it’s been a really bad day, that’s mostly what I’ll be doing,” he said. (Adamkiewicz family)

Adamkiewicz’s mother recalled a man who posted about a personal experience on the Facebook group.

“His son had passed away, and the man goes to the ocean every morning to say good morning to his son,” she said. “And there was the epilepsy shell, and he said he started crying. He said it was just like a gift to him.”

She added, “You never know whose lives you’re touching.”

Taking control

Since age 12, Adamkiewicz has been a patient at NYU Langone’s Comprehensive Epilepsy Center, one of the largest programs in the nation, where he’s had a series of brain surgeries.

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In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity.

Neurosurgeon Peter Rozman, M.D., performed the surgery alongside his mentor, Werner K. Doyle, M.D., Adamkiewicz’s longtime doctor.

laurie-kyle-adamkiewicz

Adamkiewicz and his mom, Laurie Adamkiewiz, are pictured with some of his painted shells. (Adamkiewicz family)

“This system has the capacity to actually record brain activity in the form of electrical waves that detect when the seizures start, so it can deliver an impulse to the brain at that time, with the goal of aborting the seizure,” Rozman said in an interview with Fox News Digital.

The data collected by the device is sent to the neurologist, who uses that information to program the device to better capture and treat the seizures, he said.

“Over time, people see more and more improvement in their seizures,” Rozman said.

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Rozman praised Adamkiewicz’s seashell project, emphasizing the importance of increasing awareness of the condition.

“And it gives him an outlet, too,” the doctor said. “Having other people to talk about your condition with and being part of a community can be very helpful.”

Epilepsy shell

Each shell contains a QR code that a person can scan to access information, resources and fundraisers for epilepsy. (Adamkiewicz family)

In a way, Rozman said, Adamkiewicz is turning his epilepsy into a good thing.

“It’s beneficial on both sides — for raising awareness and also allowing Kyle to have more control and to drive the story,” he said. 

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“It can be such a devastating thing to have to deal with on a daily basis, and having some sort of license and control over that is really important.”

Adamkiewicz agreed that his project has been a therapeutic endeavor for him.

“We want to teach people how to be kind, and how to help.”

“If it’s been a really bad day, that’s mostly what I’ll be doing,” he said.

“Like earlier today, I was painting some shells and had my ear buds in, just listening to some music. I’m just so focused on painting the shells that I zone everybody else out.”

Epilepsy shell

Adamkiewicz’s shells have been found in many cities and countries around the world, including in Paris, France. (Adamkiewicz family)

Adamkiewicz and his mother are also working on a children’s book to teach kids more about epilepsy and what to do if someone is having a seizure.

“When someone has a seizure, it can be frightening to other children,” said Laurie Adamkiewicz mother.

For more Health articles, visit www.foxnews/health 

“So the goal is to get some information out there, to take the stigma away from the person who has epilepsy … We want to teach people how to be kind, and how to help.”



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2nd local radio host says they were given questions ahead of Biden interview

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A second local radio host on Saturday told ABC News that he was provided a list of questions in advance of his interview with President Joe Biden this week.

“Yes, I was given some questions for Biden,” Earl Ingram of CivicMedia told ABC News. Ingram, a prominent host of a Wisconsin radio station, interviewed Biden this week in the wake of his debate performance.

Ingram said he was given five questions and ended up asking four of them.

“I didn’t get a chance to ask him all the things I wanted to ask,” he said.

Ingram is the second interviewer who now says they were provided questions by Biden aides to ask the president this week. Earlier today, another local radio host who interviewed Biden this week told CNN she was given questions to ask Biden before the interview.

PHOTO: President Joe Biden speaks to supporters during a campaign rally at Sherman Middle School, on July 5, 2024, in Madison, Wisconsin.  (Scott Olson/Getty Images)PHOTO: President Joe Biden speaks to supporters during a campaign rally at Sherman Middle School, on July 5, 2024, in Madison, Wisconsin.  (Scott Olson/Getty Images)

PHOTO: President Joe Biden speaks to supporters during a campaign rally at Sherman Middle School, on July 5, 2024, in Madison, Wisconsin. (Scott Olson/Getty Images)

“We do not condition interviews on acceptance of these questions, and hosts are always free to ask the questions they think will best inform their listeners,” the Biden campaign told ABC News on Saturday.

Ingram told ABC he didn’t see anything necessarily wrong with the practice. “To think that I was gonna get an opportunity to ask any question to the President of the United States, I think, is a bit more than anybody should expect,” he said.

He continued that he was grateful for the opportunity to interview Biden at all.

“Certainly the fact that they gave me this opportunity … meant a lot to me,” Ingram said.

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On CNN earlier today, Andrea Lawful-Sanders, the host of WURD’s “The Source,” said Biden officials provided her with a list of eight questions ahead of their interview with Biden.

“The questions were sent to me for approval; I approved of them,” she said.

“I got several questions — eight of them,” she continued. “And the four that were chosen were the ones that I approved.”

Responding to Lawful-Sanders, Biden campaign spokesperson Lauren Hitt said in a statement that it’s not “uncommon” for interviewees to share topics they would prefer. She noted that Lawful-Sanders was “free” to ask any questions she saw fit. She also noted that it was the campaign who sent over the questions and not the White House as other reports claim.

Lawful-Sanders did note in her interview with CNN that she ultimately “approved” the questions provided.

“It’s not at all an uncommon practice for interviewees to share topics they would prefer. These questions were relevant to news of the day – the president was asked about this debate performance as well as what he’d delivered for black Americans,” the statement said.

“We do not condition interviews on acceptance of these questions, and hosts are always free to ask the questions they think will best inform their listeners. In addition to these interviews, the President also participated in a press gaggle yesterday as well as an interview with ABC. Americans have had several opportunities to see him unscripted since the debate.”

A source familiar with the Biden booking operation told ABC News that moving forward they will “refrain” from offering suggested questions to interviewers.

“While interview hosts have always been free to ask whatever questions they please, moving forward we will refrain from offering suggested questions.”

2nd local radio host says they were given questions ahead of Biden interview originally appeared on abcnews.go.com



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President George W. Bush turns 78 years old

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George W. Bush, born on July 6, 1946, in New Haven, Connecticut, was the 43rd President of the United States.

Bush was born to parents Barbara Bush and former President George H. W. Bush. He has five siblings; Jeb Bush, Marvin Bush, Neil Bush, Dorothy Bush Koch and Pauline Robinson Bush. Pauline was diagnosed with leukemia and passed away at age three.

He was formerly the Republican Governor of Texas from 1995 to 2000.

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Bush was first elected to the White House in November 2000, and officially began his first term as president in January 2001, after he defeated Democrat Al Gore during the presidential election. Bush was reelected to his second term as the incumbent in November 2004, when he prevailed over Democrat John Kerry, and led the United States until January 2009 before handing over his torch to former President Barack Obama.

Bush married Laura Bush on November 5, 1977, the day after her 31st birthday, in her hometown of Midland, Texas. The couple were engaged in September 1977, and married less than two months later in a Methodist church. Bush and Laura met at a barbecue, and he took her to play mini-golf on their first date. 

The Bush’s share twin daughters, Barbara Pierce Bush and Jenna Bush Hager, born on November 25, 1981. Today, the couple also share four grandchildren; Mila, Poppy, Hal and Cora.

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During his presidency, Bush cared for his English springer spaniel, Spot Fetcher, who accompanied him to meetings in the Oval Office and on adventures throughout the White House. The dog was born to his parent’s dog, Millie.

On September 11, 2001, less than one year into Bush’s presidency, the Twin Towers in New York City were attacked by terrorists when airplanes hit both buildings, causing a collapse and thousands of lives lost. At the time, Bush was reading to elementary-aged children at a school in Sarasota, Florida. He was calmly and quietly advised of the attacks and quickly returned to Washington, where he was briefed alongside Vice President Dick Cheney.

Bush was regarded highly for his poise while learning of the attacks and for his demonstration of patriotism and leadership in the uncertain days and weeks following the hijackings of multiple planes on the day that shook America to her core.

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On December 30, 2003, during Bush’s first term as POTUS, Saddam Hussein, the Iraqi leader and executor of the 9/11 attacks on the U.S., was captured by the American military

In the early morning of December 30, 2006, during Bush’s presidency, Hussein was hanged and executed for his crimes against humanity. Americans across the nation celebrated the death of Hussein and applauded Bush for promising the country he would take him out and following through.

While Bush was regarded for his dealings with the terrorist attacks, the signing of No Child Left Behind Act and the Patriot Act and the creation of the United States Department of Homeland Security, many Americans were unhappy with the sanctions of interrogation techniques, the war in Iraq and taxes while he was president.

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These Obscure Democrats Could Soon Become Kingmakers

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They are lawyers and school board members, labor activists and faith leaders, lifelong Democrats and party newcomers. Some of them just turned 18, others are pushing 80.

These are the people who make up the 3,939 delegates to the Democratic National Convention. Some are elected, and some are selected — each state party has its own rules — for what is normally a ceremonial task: nominating their candidate for president.

But in the — still unlikely — scenario in which President Biden steps down as the nominee, they will suddenly be charged with picking a new nominee.

Most of these delegates did not set out to become kingmakers in the Democratic Party, but rather to be part of a pro-Biden slate pledging support to the president. But in the event Mr. Biden drops out, they would be vaulted from the obscurity of extras at a quadrennial television extravaganza into a group with the fate of the party — and, in the view of many Democrats, the future of the country — on their shoulders.

Many are loath to even consider that as an option, remaining steadfastly loyal to the president as he affirms his commitment to remaining in the race. And some find themselves overwhelmed by the possibility.

Phil Swanhorst, the chair of the Eau Claire County Democrats in Wisconsin and a first-time delegate, said that “with all the turmoil going on,” he did not want to discuss what he would do as a free delegate if released from his pledged status. Instead, he said he would follow the guidance of Ben Wikler, the chair of the state party.

Ronald Martin, a social studies teacher and member of the National Education Association, a teachers’ union, said he was wholeheartedly behind the president, dismissing Mr. Biden’s debate performance as simply a “bad night” — echoing the president’s words — and not representative of anything else. But forced to make a decision in the event that Mr. Biden withdraws, Mr. Martin said he would take a step back and assess the entire field rather than immediately vote for an alternative.

“I would respect President Biden’s decision, whatever he says, but again, I’d sit and listen to everything,” Mr. Martin said, adding that defeating former President Donald J. Trump remained the goal.

In a speech in Wisconsin on Friday, and in an ABC News interview that aired later in the day, Mr. Biden made it clear he had no intention of withdrawing. “I’m staying in this race,” Mr. Biden told the Wisconsin crowd, to cheers. “I’m not letting one 90-minute debate wipe out three and a half years of work.”

Almost all of the delegates — roughly 99 percent — are pledged to Mr. Biden, reflecting the popular vote in their state primaries. They are not free to support another candidate of their choosing, unless Mr. Biden withdraws. While there is a so-called conscience clause in the rules, permitting delegates to break with their delegations, it is rarely, if ever, exercised.

“This is not 2016, and it’s not 2008, when you had a split delegation,” said Donna Brazile, a former chair of the Democratic National Committee. “This is a Biden convention.”

There are also roughly 700 “automatic delegates” — formerly and commonly known as superdelegates — who are chosen because of their roles in the party. Governors, senators, members of Congress, state party chairs and other high-ranking members within the party make up this contingent, though they do not vote in the first round of nominations.

The final list of the delegates has not been released by the Democratic National Party, but a review of delegate lists released by state parties shows a diverse slate, as required by party rules.

Take the Wisconsin delegation: Among the 95 delegates, there are more than 20 local government officials, 11 current and former educators, nine labor leaders, six college students and a former executive of the Milwaukee Bucks.

Trevor Jung, one of those local government officials — he is the transit director for Racine, Wis. — said he had been involved in politics since he was 12, when his single father used to drop him off at the local Democratic headquarters. Having been a first-time delegate in 2020, Mr. Jung cannot fathom a ticket without Mr. Biden at the top and is unsure what he would do in the event of an open convention.

“I have not given it much thought, and it’s in part because I think President Biden will be our nominee,” he said. “President Biden had a bad night, and Donald Trump had a bad presidency.”

Amaad Rivera-Wagner, the chief of staff to the mayor of Green Bay, Wis., and a second-time Biden delegate, recalled receiving death threats in 2020 because people believed he had rigged the election.

“Yes, there is turmoil, but the convention feels clear to me,” Mr. Rivera-Wagner said, adding that Mr. Biden would have the best chance against Mr. Trump. While he does not believe Mr. Biden will step down, he said he would “explore my conscience but follow Democrats’ suggestion” in that unlikely event.

Most state delegations have many representatives who have served at past conventions. Judy Mount, who said she was the “first African American in the state of Florida — since Ponce de Leon got here — to be first vice chair” of the state Democratic Party, has served at every convention since Barack Obama’s first convention in 2008.

She said she remained a steadfast supporter of Mr. Biden and would follow his guidance if he were to drop out.

“Only if he makes that announcement,” Ms. Mount, 64, said. “Because I have the utmost respect for that young man.”

L. Jeannette Mobley, a delegate from Washington, D.C., who said she had also been a delegate for Mr. Obama in 2008, was similarly loyal to Mr. Biden, saying he had done more “in his first three years than most presidents” and brushing off his debate performance.

Were Mr. Biden to drop out, she said, she would also follow his recommendation.

“If he makes the decision to withdraw, I’m sure he’s going to probably come out with a recommendation,” Ms. Mobley said, adding of Vice President Kamala Harris: “Probably Kamala would be the best person to run. She’s very capable. Don’t get me wrong about that. Although I really have some concerns about whether or not America is ready for a woman president.”

Ms. Mobley mused that if Ms. Harris were to pick “one of the other individuals, like Newsom or Shapiro, then we still have a winning ticket,” referring to Gavin Newson, the governor of California, and Josh Shapiro, the governor of Pennsylvania.

Dave Jacobson, a delegate from Florida who is one year younger than Mr. Biden, called last Thursday’s debate “devastating” but was heartened by the president’s more energetic rally the next day and remains steadfastly in support. Like Ms. Mobley, if forced to vote for someone else by Mr. Biden’s withdrawal, Mr. Jacobson said that “the vice president would be the logical choice.”

“It would be a travesty if something were to happen that Joe bowed out and that Kamala would not be our nominee,” Mr. Jacobson said. “If she is not, the Democratic Party will face a pretty devastating election on Nov. 5.”

June Kim, Eli Murray, Andrew Park, Helmuth Rosales, Elena Shao and Amy Schoenfeld Walker contributed reporting. Alain Delaquérière contributed research.



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